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    How to Be Sick

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      Wisdom Publications — a special thank you to all the members of the Wisdom team for their wholehearted commitment to this book — especially Lydia Anderson, who worked so hard to promote Wisdom’s impressive catalogue of offerings. I’m also grateful to Phil Pascuzzo for his exquisite cover designs for all of my books and to freelance editor Barry Boyce, who so beautifully polished the first edition of the book when the manuscript was in its final stages.

      All my Dharma teachers — from those I’ve met in person to those I’ve studied under through their books. Thank you for the gift of the Buddha’s teaching.

      Recommended Reading

      Aitken, Robert. The Dragon Who Never Sleeps

      Aitken, Robert. The Mind of Clover

      Batchelor, Martine. The Spirit of the Buddha

      Batchelor, Stephen. Buddhism Without Beliefs

      Beck, Charlotte Joko. Everyday Zen

      Boorstein, Sylvia. Happiness Is an Inside Job

      Boorstein, Sylvia. It’s Easier Than You Think

      Brach, Tara. Radical Acceptance

      Buddhadasa, Bhikkhu. Heartwood of the Bodhi Tree

      Chah, Ajahn. Food for the Heart

      Chah, Ajahn. A Still Forest Pool

      Chödrön, Pema. Start Where You Are

      Chödrön, Pema. The Wisdom of No Escape

      Dalai Lama, H. H. Beyond Religion

      Goldstein, Joseph. Insight Meditation

      Goldstein, Joseph, and Jack Kornfield. Seeking the Heart of Wisdom

      Gunaratana, Bhante Henepola. Mindfulness in Plain English

      Hanson, Rick. Buddha’s Brain

      Hart, William. The Art of Living: Vipassana Meditation as Taught by S. N. Goenka

      Hass, Robert, editor. The Essential Haiku: Versions of Basho, Buson, and Issa

      Kabat-Zinn, Jon. Wherever You Go, There You Are

      Katie, Byron. Loving What Is

      Khema, Ayya. Being Nobody, Going Nowhere

      Khema, Ayya. When the Iron Eagle Flies

      Macy, Joanna. World as Lover, World as Self

      Miller, Karen Maezen. Hand Wash Cold

      Mitchell, Stephen, editor. The Enlightened Heart

      Nhat Hanh, Thich. The Miracle of Mindfulness

      Nhat Hanh, Thich. Present Moment Wonderful Moment

      Nhat Hanh, Thich. The Sun My Heart

      Olendzki, Andrew. Unlimiting Mind

      Olendzki, Andrew. Untangling Self

      Rahula, Walpola. What the Buddha Taught

      Richmond, Lewis. Healing Lazarus

      Rumi, Maulana. The Essential Rumi. Translated by Coleman Barks with John Moyle

      Ryokan. Dewdrops on a Lotus Leaf. Translated by John Stevens

      Salzberg, Sharon. Lovingkindness

      Seung, Sahn. Dropping Ashes on the Buddha

      Sumedho, Ajahn. The Mind and the Way

      Suzuki, Shunryu. Zen Mind, Beginner’s Mind

      Yamada, Koun. The Gateless Gate

      Index

      A

      abusive speech, 164–65

      accepting things as they are, 26, 87–89, 93–95

      activities with others, 84, 192, 198. See also friends

      advice, unsolicited, 82

      Aitken, Robert, 50, 147, 149, 153–54

      The Dragon Who Never Sleeps, 153

      The Gateless Barrier, 149

      aloneness, 174, 176, 191–92

      alone and cut off, 168–70

      spreads, 171

      See also loneliness; solitude; suffering: present in lives of all beings

      “Am I sure?” practice, 151–52, 189, 193

      anatta, 29, 40. See also no-fixed-self

      anger, 58–59, 73, 75, 88, 103, 115, 117, 133, 138, 150, 164, 192. See also resentment

      anicca. See impermanence

      appreciating that one had enjoyed activities for years, 192, 194

      attachment, 101, 151

      aversion, 100, 103–6, 186, 188, 190. See also “Want/Don’t-Want Mind”

      awakening, 28

      of Buddha, 34

      See also liberation

      B

      “Beautiful Boy” (song), 144

      begging bowl, 182

      beginner’s mind, 148

      Being Nobody, Going Nowhere (Khema), 72

      beliefs. See thoughts and beliefs

      Berry, Wendell, 23

      blaming oneself for one’s illness, 63, 188–89

      Boorstein, Sylvia, 63, 64, 102–4

      Happiness Is an Inside Job, 102–3

      brahma viharas. See sublime states

      breast cancer, xx, 26, 66–68, 82, 91, 110, 132, 182

      breathing practices, 67, 108, 110, 128–29. See also tonglen

      broken-glass practice, 36–38, 191

      Buddha (Siddhartha Gautama), 4, 29, 37, 79, 148–49, 153, 185, 193, 197

      awakening, 34

      break from Hinduism, 40

      on community, 167

      on dukkha, 24–25, 27, 120 (see also Four Noble Truths)

      on impermanence, 29, 37

      list from the first noble truth, 23–26, 66, 182, 183

      on suffering, 23–28, 49, 100, 181–82

      on thoughts and the mind, 67, 117, 159

      on three marks of experience, 29, 40

      tonglen and, 107

      on wise speech, 83, 159–61, 163–65

      See also Eightfold Path; Four Noble Truths

      Buddha/buddha, 72

      nature of, 148–49

      putting head in lap of, 181

      Buddhadasa Bhikkhu, 99–100

      burnout, caregiver, 197–98

      C

      Cage, Nicolas, 32

      cancer, 14, 26, 67, 68, 83. See also breast cancer

      caregiver inaction, scheduling time for, 145

      caregivers, 53, 83, 171

      burnout, 197–98

      chatting, 163–64

      isolation experienced by, 171

      patient endurance, 72–73

      suggestions for treatments, 83

      what (not) to do, 144–46

      Cash, Rosanne, 182–83

      Chah, Ajahn, 79

      Food for the Heart, 36

      letting-go practice, 90–92, 186, 190, 192, 197

      on middle ground, 138

      on not standing up in line of fire, 81, 189–90

      A Still Forest Pool, 81, 90, 138

      See also broken-glass practice

      chatting, 163–64

      Chödrön, Pema, 108

      chronic fatigue and immune dysfunction syndrome (CFIDS), 17. See also ME/CFS

      chronic fatigue syndrome (CFS), 17, 18

      nature of, 17–20

      terminology and alternate terms for, 17–20

      See also ME/CFS

      Chuang Tzu, 25–26

      clinging, 101, 103, 114

      Collins, Steven, 42

      communicating with care, 159–65, 193. See also wise speech

      community, 167

      online/cyber, 173–75

      compassion

      conditioning the mind to respond with, 62, 63

      contrasted with kindness/metta, 55

      Dalai Lama on, 78

      definition and nature of, 61

      and happiness, 78

      moving mind toward, 192

      “slogans” for practicing the path of, 108

      as sublime state, 50 (see also sublime states)

      and taking the initiative to connect with others, 69–72

      translations of the term, xix–xx

      See also self-compassion; suffering: opening heart to; tonglen; specific topics

      compassion phrases spoken to oneself. See self-compassion phrases

      Connected Discourses of the Buddha, 182

      cures, suggestions for, 83

      “cut off the mind road” (Zen Buddhism), 70, 148

      cyber relationships, 173–75

      D

      Dalai Lama, Fourteenth (Tenzin Gyatso), 78, 181

      Descartes, René, 43

      desire, 27, 68, 90–91, 100–104, 176–77

      unquenchable thirst, 27

    &nb
    sp; See also “Want/Don’t-Want Mind”

      Dhammapada, 114

      Diamond Sutra, The, 36

      Diamond That Cuts through Illusion, The (Nhat Hanh), 62, 69

      “difficult persons,” 58

      disappointment of failed treatments, coping with, 196

      discursive thinking

      example of, 127

      taking a break from, 126–28, 187, 188, 191, 194, 195, 197

      dismissive treatment from medical professionals, handling, 189–91

      Dive from Clausen’s Pier, The (Packer), 177

      divisive speech, 164–65

      doctors, 84–87

      dismissive treatment from, 189–91

      insensitive and hurtful comments, 82

      Dogen, Eihei, 30, 32, 36, 195

      Eihei Koroku, 30

      “doing nothing” practice, 137, 187. See also wise inaction

      “Don’t-Know Mind” practice, 150–52, 155, 187, 189, 195, 197–98

      Dragon Who Never Sleeps, The (Aitken), 153

      drop-it practice, 130–34, 187, 188, 190–91, 194–96

      dukkha, 101, 136

      Buddha on, 24–25, 27, 120 (see also Four Noble Truths)

      causes/sources of, 25, 27, 68, 120, 176–77

      end of, 27–28

      translations and meanings of the term, 24–25, 176–77

      See also suffering

      Dzogchen, 44

      E

      ease of well-being, 56

      Eightfold Path, 27–28, 49, 135

      “email friendships,” 174–75

      emotions

      labeling, 76

      See also moods

      empathetic joy, 50, 103, 111, 191

      cultivating, 50–53, 61–62, 104–5, 186

      moving mind to, 186, 192

      See also sublime states

      endurance. See patient endurance

      enlightenment. See awakening

      envy, 50–53, 61–62, 103, 163, 164, 191

      equanimity, 36, 50, 105

      facing the ups and downs of chronic illness with, 79–87

      See also sublime states

      equanimity practices, 87

      accepting loss, 93–95

      giving in instead of giving up, 92–93, 192, 194, 197, 198

      Whatever happens, it’s okay, 87–90

      See also letting-go practice

      Eternal Now, The (Tillich), 175

      Everyday Zen (Joko Beck), 26

      F

      Facebook, 174, 183

      family, 145

      feeling ignored by, 193–95

      staying close to, 172–73

      family gatherings, inability to participate in, 191–92

      Fiddler on the Roof (musical), 52–53

      50 percent rule, trying the, 143

      Food for the Heart (Chah), 36

      forgiveness, 95, 185

      forgiveness practices, 69

      Four Noble Truths, 23, 26, 49, 56, 101

      first noble truth, 23–26, 66, 68, 120, 161, 178

      second noble truth, 27, 31, 68, 100, 120

      third noble truth, 27

      fourth noble truth, 27–28

      friends, 115–17, 145, 168–71

      feeling ignored by, 193–95

      inability to visit, 191–92

      friendships

      email, 174–75

      in-person, 171–72

      future, fear of, 76, 131, 187, 196

      G

      Gateless Barrier, The (Aitken), 149

      Gateless Gate, The (Yamada), 150

      gathas, 152–54

      generosity practices, 69–70

      giving in instead of giving up, 92–93, 186, 190, 192, 194, 197, 198

      Goenka, S. N., 100–103

      Goldstein, Joseph, 11–12, 29, 41, 42

      Seeking the Heart of Wisdom, 41

      gratitude for the past, 192, 194

      Gross, Terry, 182–83

      H

      haiku, 152, 154–55

      Hakuin, 181

      “half-smile” practice, 126

      happiness

      compassion and, 78

      Dalai Lama on, 78

      See also empathetic joy

      Happiness Is an Inside Job (Boorstein), 102–3

      Harrison, George, 40, 42

      Hart, William, 100

      health advice, unsolicited, 82

      health-care system, navigating the, 73–75

      heart. See compassion; suffering: opening heart to

      Hinduism, Buddha’s break from, 40

      humor. See laughter

      I

      “I Me Mine” (song), 40, 42

      “I think, therefore I am” (Descartes), 43

      idle chatter, 163–64

      illness

      benefits of being sick, 119

      inquiry regarding hating to be sick, 118–19

      suffering and, 24

      “There is sickness here, but I am not sick,” 40, 187, 189

      See also specific topics

      impermanence, 29–38

      and experiencing the no-self, 42 (see also no-fixed-self)

      overview and nature of, 29, 30

      indifference vs. equanimity, 92. See also equanimity

      inner critic, 65, 67, 92

      disidentifying from your, 65–66, 188, 196, 198

      inquiry practice (Byron Katie), 178, 187, 189, 191, 193, 195–96

      and coping with loss, 170

      overview, 114–20

      steps in questioning the validity of stressful thoughts, 115–16

      insensitive and hurtful comments, 80–83

      Insight Meditation Society (IMS), 12

      insomnia. See sleeplessness

      Institute of Medicine (IOM), 19–20

      Internet, 168, 172–73, 192, 194, 198. See also cyber relationships

      invisible illness, 80–81, 169

      Issa, Kobayashi, 136, 154–55

      “It’s okay if...” practice, 89–90

      J

      Joko Beck, Charlotte, 178, 182, 185, 193, 195, 197

      Everyday Zen, 26

      joy in the joy of others. See empathetic joy

      judge, inner. See inner critic

      Jumnian, Ajahn, 87–91, 192, 197

      K

      karuna. See compassion; sublime states

      Katie, Byron, 114, 124–25, 170, 175–78, 187–89, 191, 193–97

      on arguing with the way things are, 11

      turnaround, 115–20

      See also inquiry practice

      khanti, 72. See also patient endurance

      Khema, Ayya, 72, 100, 102, 113, 114, 127–28

      Being Nobody, Going Nowhere, 72

      When the Iron Eagle Flies, 100

      kindness, 50, 55–59, 105, 164, 186, 188, 193. See also metta; sublime states

      Ko Bong, 95, 144

      koans, 43, 148–51

      Kornfield, Jack, 11–12, 41, 64, 88

      Seeking the Heart of Wisdom, 41

      L

      laughter, xxiv, 148, 149, 153, 187

      Lennon, John, 144

      letting-go practice, 90–92, 186, 190, 192, 197

      Levine, Stephen, 61

      liberation

      moments of, 134

      See also awakening

      life is always all right, 26, 182, 185, 193, 195, 197

      loneliness, 174–78, 192, 194–95. See also aloneness

      loss, accepting, 93–95

      loving-kindness. See kindness

      M

      Macy, Joanna, 39, 43–44, 111

      Masters, Kamala, 12, 39–40, 57

      ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome), 17–20, 73, 168, 173, 175, 201

      meditation, 121–23

      metta

      defined, 50, 55

      moving mind to, 104

      nature of, 55

      See also kindness; sublime states

      metta phrases, 55–57, 186, 188, 190, 193, 196

      metta practice, 55, 57, 104

      mind

      Buddha on, 67, 117, 159

      end of suffering in the, 57


      flexibility of, 67

      shocking the, 148–50

      as sixth sense, 100

      See also thoughts and beliefs

      mindfulness, 70–71, 76, 127, 133–34, 139, 153

      cultivating, 70

      moments of, 134

      of the present moment (practices), 124–26, 130–34

      use of the term, 123

      mindfulness exercises, 126

      mindfulness meditation, 121–23

      Miracle of Mindfulness, The (Nhat Hanh), 126

      moods, compared with wind, 32–33

      Mozart, Wolfgang Amadeus, 55

      mudita. See empathetic joy; sublime states

      multitasking vs. one thing at a time, 139–41

      Mumon (Wumen), 148

      Munindra-ji, Anagarika Shri, 39–40, 187, 189

      Munson, Peggy, 169–70

      music, half-smile while listening to, 126

      myalgic encephalomyelitis (ME), 17–18. See also ME/CFS

      N

      Nakagawa, Soen, 148

      National Academy of Medicine. See Institute of Medicine

      Neem Karoli Baba, 43, 50

      Nhat Hanh, Thich, 62, 126, 132, 151–52

      on compassion, 62, 69, 186

      The Diamond That Cuts through Illusion, 62, 69

      on gathas, 152–53

      on impermanence, 30

      mindfulness exercises, 126

      on mindfulness of present moment, 121, 126, 130, 132

      The Miracle of Mindfulness, 126

      Old Path White Clouds, 30

      Present Moment, Wonderful Moment, 152–53

      See also “Am I sure?” practice

      no-fixed-self, 29, 40–44

      essence of, 81

      no-self, 40

      experiencing, 42–44

      See also no-fixed-self

      O

      Old Path White Clouds (Nhat Hanh), 30

      one thing at a time (vs. multitasking), 139–41

      Only Dance There Is, The (Ram Dass), 43

      Orr, Mary Grace, 62–64, 188, 196, 198

      orthostatic intolerance, 18–19

      P

      pacing, 142, 144, 187, 198

      defined, 142

      suggestions for succeeding with, 142–44

      Packer, Ann, 177

      pain, physical, xvi, 33–34, 62, 89–91

      Buddha and, 181–82

      See also specific topics

      past

      gratitude for the, 192, 194

      regrets about the, 131, 187

      patience, 72, 75. See also patient endurance

      patient advocate, caregivers in role of, 73

      patient endurance, 164–65, 186, 190, 196, 198

      cultivating, 72–75

      perfections, ten, 72

      pleasant vs. unpleasant sensations, 26–27, 31, 100–102, 134

     


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