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    House Arrest

    Page 7
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      The Google box was blank.

      I couldn’t type.

      My brain was a black hole

      pulling every particle of Isa

      into it

      and forgetting everything else.

      Look.

      Isa stood behind me, her arm reaching over my shoulder.

      She pointed to the screen

      but I looked at her arm,

      at the freckle just above the inside of her elbow.

      It’s a really nice freckle.

      Round

      but slightly gross.

      There’s a hair in the middle.

      A really long hair.

      You’re not looking.

      My eyes traced her arm to get to the screen.

      Isa tapped the monitor.

      It’s not a touch screen, I said.

      I know, dummy.

      She smacked the back of my head with her other hand.

      LOOK.

      I looked.

      Dr. Samuel Sawyer

      Cincinnati Children’s Hospital

      specialty: airway

      Accepting new patients

      We did it!

      We found someone!

      But wait.

      Cincinnati?

      Uuugh.

      Might as well be Antarctica.

      And of course he’s the only doctor

      in the whole freaking country

      who does this surgery.

      I dropped my head on the desk.

      A hand patted my shoulder.

      I peeked open my eyes

      saw the freckle one more time,

      so pretty

      so gross.

      Nothing is perfect, is it?

      Reckless is the word Mom used.

      How would I know you were going to José’s house?!

      she asked, slamming her hand on the table.

      How would I know you wouldn’t be

      wandering the streets

      getting into trouble

      getting picked up again

      getting sent to juvie for real?!

      How do we know anything?

      That’s what I said.

      Maybe I should have said

      But I found him!

      I found the doctor who can save Levi!

      But I didn’t.

      I didn’t say anything else.

      I just stared at the table

      while my mind went crazy

      saying Cincinnati

      Cincinnati

      Cincinnati

      over and over and over again.

      Timothy!

      Mom grabbed my arm.

      Are you even listening to me?

      You have to be responsible now.

      You can’t go back to juvie.

      You just can’t.

      And she started to cry.

      WEEK 24

      I can’t tell Mom about Cincinnati.

      Not until everything is perfect.

      This won’t be one of those things,

      the things that Timothy screws up.

      This won’t be one of those things,

      the things that Timothy thinks are helpful

      until they aren’t.

      This will be the thing.

      The thing that makes up for everything.

      No, Mrs. B.

      I do not think my hopes are too high.

      I will make this happen.

      No matter what.

      Yes, James.

      I realize that making something happen

      no matter what

      is what got me into this mess

      in the first place.

      For real, though.

      You guys.

      You have to read these stories.

      See these pictures.

      Little dudes just like Levi,

      who couldn’t breathe

      who couldn’t eat right

      who are now all grown up

      playing baseball

      eating tacos

      laughing

      talking

      all because they wouldn’t take no for an answer.

      All because when they heard let’s wait and see

      they said, I don’t think so, nerds.

      All because of Dr. Sawyer

      and the surgery he invented.

      This really could fix everything.

      Cincinnati.

      Like Ponce de León looking for the Fountain of Youth.

      Like those bible guys looking for the Holy Grail.

      Like Lewis and Clark looking for the Pacific.

      We need money

      supplies

      a travel plan

      appointments.

      I am Levi’s Sacagawea

      sitting in the front of the canoe

      watching out for monsters

      and following a map

      that is in my head

      and my head only.

      Har har.

      No, I don’t want a headdress, James.

      It was just a metaphor.

      Ha! That’s a haiku!

      WEEK 25

      How many balloon animals equal one plane ticket?

      How many bags of popcorn

      equal food and hotel and a car?

      How many pitches at the dunking booth equal

      one fixed trachea?

      The crumpled Carnival of Giving flyer.

      It’s smoothed out on my desk.

      We have to get Levi to Cincinnati.

      We have to.

      Tortilla, warm

      wrapped around a sausage.

      Coke, cold

      sweating in my hand.

      Nose, burning

      on fire from the sun.

      Throat, scratchy

      screaming, yelling, cheering.

      That’s what I think of, Mrs. B

      when you say to close my eyes,

      imagine my favorite place

      my safe place.

      Darryll K. Royal—Texas Memorial Stadium

      September

      Football

      Hand, firm

      shoulder being squeezed.

      Heart, pumping

      arms raised in victory.

      Smile, stretching

      Dad looking so happy.

      Just like that

      my safe place is ruined

      because he couldn’t have been happy.

      It was just a trick.

      I open my eyes and poof, he’s gone.

      Another trick.

      That’s why I hate this, Mrs. B.

      My happy place stinks.

      Dear Sir:

      To Whom It May Concern,

      Hey, you!

      Hello there, Dr. Sawyer, Sir,

      Hello.

      Dear Dr. Sawyer,

      I saw on the Internet

      that you are a famous doctor

      who can fix babies’ tracheas

      tracheas that babies have that are not working right.

      My brother Levi’s trachea does not work all that great.

      It is very tiny.

      He has a trach to breathe.

      I think you might be able to help him,

      but we live in Texas

      and you are in Ohio.

      Can you still help him?

      Please write back soon.

      Your friend,

      Thanks,

      Bye,

      You better help!

      Sincerely,

      Timothy Davidson

      You guys really have your hands full

      with this one.

      Mary says this when she’s suctioning him

      and he’s barfing

      because she’s suctioning too deep

      and now she’ll have to change the ties

      (that should be chains)

      for the 87,000th time today

      and I will help

      because I am a nice person

      and because Mom isn’t home from work yet

      and because I don’t want Levi to get a rash.

      But seriously.

      This one?


      She calls him this one?

      His name is Levi, by the way.

      That’s what I say when we’re finished.

      This one right here. This baby.

      His name is Levi.

      You should call him that sometime.

      I go upstairs after that.

      Otherwise Mary will call the agency,

      tell them Mom isn’t here,

      and that will get us in trouble.

      And even though Mary stinks like a triple fart

      we still need her.

      A nurse every day is a luxury,

      or so Mom keeps saying.

      It feels more like a curse to me.

      The one good thing about hating Mary,

      I mean disliking Mary times a million,

      is that I get to go to José’s house a lot more.

      (Only with Mom’s permission,

      and only when José’s mom is there,

      and only because the judge said it was OK,

      so don’t get all sweaty about it, James.)

      Go cool off, Mom says.

      So I go cool off.

      By playing Halo

      and killing aliens.

      By seeing Isa doing her homework

      and feeling my face turn red.

      By eating as many snacks as I can stand

      and feeling my belly burst.

      Maybe I should send Mom over there one day,

      where everyone is yelling and laughing,

      and pushing and knocking into stuff.

      Where everything is so messy

      but so easy,

      where she can cool off, too.

      A vacation for an hour

      in José’s crazy living room.

      Wow, you guys did all this?

      I don’t mean to sound surprised

      but I kind of am.

      The turtle has an engine

      where the hole used to be.

      It has headlights

      in its formerly empty eye sockets.

      No seats yet

      but there are new tires,

      and those tires have zero holes.

      Yeah, we did all this,

      José rolls his eyes, hits my shoulder.

      I did all this,

      José’s dad rolls his eyes, punches José in the shoulder.

      With help! José laughs.

      With help, his dad says.

      It looks great, I say.

      Less like a turtle every day.

      They both hit me on the shoulder

      and we all laugh.

      WEEK 26

      Breathless.

      I hate to use that word.

      You know.

      But this is how I actually felt

      driving to Mrs. B’s office.

      Mom said,

      You’re acting really weird.

      I said,

      No, I’m not!

      But my knee was bouncing

      my fingers tapping

      my eyes watching the

      slow slow slow

      speedometer.

      Then we were there.

      I sprinted up the stairs

      accidentally banging the door to the office

      when I threw it open.

      Mrs. B’s eyes grew and grew

      along with her smile

      when I said,

      Hey, Mrs. B!

      I saw the tiny shrug

      she shared with Mom,

      then we were in her office.

      I was bouncing on her couch:

      So? What did he say?

      Just by her face I knew to stop bouncing.

      She tucked her hair behind her ears,

      she sucked her bottom lip for 1.2 seconds.

      No response yet,

      she said.

      I was breathless again

      but this time the opposite way,

      the punched-in-the-stomach way.

      But! She held up her hand.

      It’s only been a week.

      He’s very busy.

      Take a deep breath, Timothy.

      Give him time.

      Time is not an easy thing, Mrs. B,

      when Levi could use so much help

      right this very second and the next second

      and the one after that.

      I thought the whole point

      of me sending that e-mail

      from your e-mail address

      was to get the doctor to e-mail back

      FASTER.

      I will find the money to give to Dr. Sawyer.

      All the money he needs.

      But finding the time to wait for him?

      You can’t have bake sales for that.

      I already know.

      I know.

      I know!

      Thank you, Mrs. B, for explaining to me how it works.

      But I already know.

      I read it on the website.

      You call.

      You make an appointment.

      But then what?

      It’s the then what that needs the answers.

      It’s the then what that worries me.

      It’s the then what that’s making me e-mail him.

      When I tell Mom the Cincinnati plan

      I need answers for ALL of the then whats

      plus probably some extra ones, too.

      I need so many answers.

      José opened the door.

      I guess I looked surprised

      when I said, Oh, hi. It’s you.

      Who did you think it would be?

      He laughed.

      I swallowed.

      Because

      um

      I thought it would be Isa.

      I thought I would tell her that Dr. Sawyer

      hadn’t responded.

      I thought maybe her long eyelashes

      would dip down

      and her dark eyes would look up

      and she would say,

      Oh, man. That stinks, Timothy.

      And I would nod.

      And maybe she would pat my arm.

      My face flushed

      and José narrowed his eyes.

      He looked red-hot mad

      then he said,

      She’s right here.

      GORDITA!

      he shouted

      making me red-hot mad

      and then there she was

      and he was gone.

      Simpering.

      It’s a word I didn’t know.

      I thought it meant something to do with food.

      But that’s not it.

      Simpering is smiling

      when you think you’re better than everyone else.

      Simpering is looking at your hands,

      shrugging,

      then smirking and saying words that cut like knives.

      It’s amazing how long you have managed,

      simpered Mary.

      He really does have complex medical needs,

      doesn’t he?

      simpered Mary.

      We all need four hands, don’t we? Just for one baby!

      simpered Mary.

      I can’t even simper back, because I’m scared.

      I’m scared she’s up to something.

      I can see it in her eyes.

      Those big, stupid cow eyes.

      Who are you to tell us what he needs?

      I screamed it.

      So loud.

      So loud.

      My throat felt like I’d swallowed sandpaper.

      She doesn’t know him.

      She doesn’t know anything.

      She thinks happy leg means he needs a new diaper.

      What does she know?

      Zero things.

      None of the things.

      And she’s always talking in that baby voice.

      That fake, awful baby voice.

      She thinks he should be moved to a facility.

      She thinks he needs more care than we can give him.

      I give him ALL my cares!

      The only thing I can care about is Levi!

      And it’s the same with
    Mom.

      I know it.

      If you could die from caring too much, she would.

      A facility?

      What does that even mean?

      A permanent hospital?

      A nursing home, like for old people?

      Could she take Levi from us?

      Could that happen?

      I want to scream.

      And then puke.

      And then scream some more.

      WEEK 27

      Just so you know

      I’m not speaking to Mom

      possibly ever again.

      I can’t believe she actually agreed to do this.

      I can’t believe we’re going.

      I can’t look at her.

      I can’t talk to her.

      This can’t be happening.

      It smells in here

      like the hospital

      like juvie

      like cleaning tables in detention

      like the smell is a warning

      ABANDON HOPE ALL YE WHO ENTER HERE.

      I hope Mom can smell it, too.

      I hope Mary chokes on it.

      A tour of the facility is not a commitment.

      Mom mumbled that sentence

      in the car ride home

      while Mary suctioned Levi

      and I bit the corner of my thumbnail so hard

      it bled

      red drips of blood.

      His head is so fuzzy.

      I mean, it hardly counts as hair.

      And his eyes are so bright

      like there is a power source

      inside his head

      with extra voltage.

      And his smile is so wide

      it goes from one side of his face to the other

      but not in a creepy way,

      not in a Joker way.

      And his fingers work so hard

      to tell me what he wants

      to tell me what he needs.

      And his happy leg

      goes crazy

      just goes bananas

      when Baby Signing Adventure comes on TV.

      And he signs

      more more more.

      And he signs

      yes yes yes.

      And he signs

      please please please.

      So I turn it up

      and I pull him into my lap

      and we learn new signs together.

      And I swear to you

      if anyone tries to take him away

      I will risk juvie to keep him out of that place,

      that facility.

      Mom says:

      The state will pay for the facility

      if Levi’s doctors say he needs it.

      There’s a special program.

     


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